Being involved in the study

What is involved in being part of the BSRBR-RA?

Currently, data is collected from participants via questionnaires every six months for three years, and information on drug changes, hospital admissions and referrals is collected in a study 'diary'.

Questionnaires are sent in the post when they are due. If you have received a reminder to complete one of our questionnaires, you can download a blank copy of the baseline form or the follow-up form to post back to the study offices. If you are returning a follow-up questionnaire, please also include a diary (see below) for the same period. Please note that the sending of questionnaires to participants directly is currently on hold.

Information is also collected via the participant's consultant for the duration of the study. The current end date is 30 September 2028.

Why get involved?

By participating, you will help us build up the amount of data we have for analysis. With more data, we will be able to reach better-informed conclusions on the long-term safety of the biologic treatments.

If you are not involved in the study but would like to be, please speak with your rheumatology team to see if you are eligible to join.

If you are already involved in the study and have some further questions, please contact the team at biologics.register@manchester.ac.uk.

You may find the patient information sheet (PDF, 159KB) useful if you would like to find out more about what participating in BSRBR-RA involves.