Being involved in the study

What is involved in being part of the BSRBR-RA?

Currently, data is collected from participants every six months (for the first three years) and then annually (for the duration of the study).  This data collection is now done electronically rather than via paper questionnaires.

Participants who consent to this aspect of the study will receive emails when questionnaires are due for completion, with a secure link to enter the data directly into the study database.

Information is also collected via the participant's consultant for the duration of the study. The current end date is 30 September 2028.

Why get involved?

By participating, you will help us build up the amount of data we have for analysis. With more data, we will be able to reach better-informed conclusions on the long-term safety of the biologic treatments.

If you are not involved in the study but would like to be, please speak with your rheumatology team to see if you are eligible to join.

If you are already involved in the study and have some further questions, please contact the team at biologics.register@manchester.ac.uk.

You may find the patient information sheet (PDF, 159KB) useful if you would like to find out more about what participating in BSRBR-RA involves.