Clinical follow-up data is collected every six months for three years (follow-ups 1-6), then annually thereafter (follow-up 7+).
The documents below reflect the data collected at follow up for participants in the BSRBR-RA.
You don't need to remember to complete these forms, as the online database will indicate which participants are due follow-up and allow you to enter the data directly.
- Clinical follow-up questionnaire (PDF, 723KB)
We also collect quality of life data via questionnaires (HAQ, EQ-5D) and six-monthly diaries (to record hospitalisations, referrals and new drugs) directly from patients*, every six months for the first three years after registration.
- Patient follow-up questionnaire (PDF, 750KB)
- Patient six-monthly diary (PDF, 600KB)
*Please note that the sending of questionnaires to participants directly is currently on hold.