Follow-up information

Clinical follow-up data is collected every six months for three years (follow-ups 1-6), then annually thereafter (follow-up 7+).

The documents below reflect the data collected at follow up for participants in the BSRBR-RA.

You don't need to remember to complete these forms, as the online database will indicate which participants are due follow-up and allow you to enter the data directly.

• Clinical follow-up questionnaire (PDF, 723KB)
  
  

We also collect quality of life data via questionnaires (HAQ, EQ-5D) and six-monthly diaries (to record hospitalisations, referrals and new drugs) directly from patients*, every six months for the first three years after registration.

• Patient follow-up questionnaire (PDF, 750KB)
• Patient six-monthly diary (PDF, 600KB)

*Please note that the sending of questionnaires to participants directly is currently on hold.